Showing posts with label RE. Show all posts
Showing posts with label RE. Show all posts

Thursday, 17 November 2016

IVF a US vs. Canada Comparison

Undergoing IVF is no easy task. It is not only financially draining, but mentally/emotionally and perhaps most noticeably, physically as well. Each doctor, each clinic, is going to do things a little differently. Their processes will differ, so will their protocols... but overall IVF is IVF. Broadly looked at, we go through very similar experiences: injections, ultrasounds, egg collection etc. But when we narrow in, you'll often find each individual's journey is vastly different from the next. And I'm not only referring to how much medication is administered, how many days of injections there are, how many eggs are produced, or what fertilization rates were, but rather the process itself.

Having been born and raised in Canada, I was afforded the comforts of public healthcare. I never knew or understood what all the fuss was about in the US. I would hear grumblings over lack of insurance, or grumblings over Obamacare, but I never really had a grasp of what it all meant. I was privileged to not have to find out. I had my coverage, and that's all that mattered to me. When I discovered I was dealing with infertility, a little question in my head lingered... "Why would Americans complain when even IVF is covered there!?" Well not for everyone... and not everything. Let's compare.



When we underwent our first cycle of IVF back in Canada, we had been waiting for ages it felt like. Once referred, we had a long wait with no information. Our names were submitted and we were to wait for the call. Months went by before we finally did receive that call, only to book an appointment months out from there. It was a long arduous wait to even BEGIN the process. But once we were there we felt well cared for. We loved our doctor, he gave it to us straight, and we made the decision to go straight to IVF which he allowed us to do.

Because IVF is not covered under public health in Canada, IVF would be out of pocket. So signed the crazy amounts of paperwork, paid our deposit (I can't recall the dollar value, but as you can imagine, not cheap), and we officially were beginning our cycle. We had an in person appointment with the nurse to go over injections, how they're to be administered etc. and on our way out of the clinic we were to stop by the pharmacy window located in the office and were handed our bag of medications. It was in a purple plastic bag, all well organized with everything we would need for the entire cycle. We were fortunate to have good insurance coverage that allowed for basically all of our meds to be covered, but that was it. The price tag of monitoring, egg retrieval, ICSI and transfer were all bundled up into our out of pocket expense for IVF.

Each appointment we had a different doctor, as about 6 or more doctors rotate in that clinic... perhaps due to it being public health, I don't know. And it was the only clinic in our province!!! So we literally had no other options. I didn't see my own doctor once between stimming and transfer so when we went for our follow up "wtf" appointment, he was a bit surprised to hear we weren't successful given our age and "unexplained" diagnosis. When I told him the transfer was difficult, he was also surprised given it wasn't noted in my file. Hmm...

The second round wasn't much different, except we lucked out and ended up having him perform our transfer. It went much smoother and he gave us hope touting that perhaps our lack of success previously could have been attributed to trauma to the embryos. Our second "wtf" appointment didn't offer any new considerations, and when I asked about a lot of new techniques, tests and otherwise, I was told studies weren't yet conclusive so they won't try them. And in regards to testing, well even if it did show something was wrong, they didn't have means to treat any of it because the treatments were not yet proven. I felt like I was going in circles, and so we took a long break.



When we moved to the states for my husbands work, we were excited to give it another shot. I had been in many forums with these women trying all sorts of different techniques and treatments and was hopeful that intralipids were my winning ticket. (spoiler alert: they weren't). This time we had the luxury of actually choosing a clinic to work with. We did a lot... and I mean a LOT of research, and I eventually stumbled upon SIRM. We chose the clinic specifically due to their stance on immune related factors, something that in my gut I attributed our failures to, and set up a consultation. I could have gotten in within a week or so with one doctor, but I chose to wait and work with the clinic director, someone who I trusted based on women's experiences with him. But even the added wait was only a few weeks long, a far cry from the months to get into the clinic in Canada.

So we had our consultation and it was refreshing to hear him take all my concerns seriously and offer the various tests and subsequent treatments. Unfortunately, many of these tests would NOT be covered by insurance. So in the end we couldn't afford all the testing we wanted to have if we were going to be able to afford IVF. We had to learn quickly about co-pays and out of pocket caps and ignoring "bills" that were not bills, but could be bills... Our heads were spinning. Had I not already undergone IVF and understood the ins and outs of the actual process, it would have nearly made me collapse to the floor in sheer overwhelm combined with the complexities of insurance. In the end, portions of our treatment were covered, but even to this day it's not clear exactly how much we spent out of pocket. We still are disputing bills that should have been covered by insurance. And on top of that, a lot of medication wasn't covered.

The process itself was also different. Each and every time I went in I was seeing the same nurse, my doctor, and oftentimes the same receptionist and blood draw nurse. It had a real sense of care, and they remembered me, and I them, and I felt an investment in my care. On top of it, my doctor makes himself accessible via email anytime... which is a daunting task when you have numerous patients. I try my best to not over utilize this, respecting boundaries, but it's nice to know if something comes up In Canada I'd often have to wait for a call back, or for next appointment or whatever, to get my questions answered... and usually from a nurse. This felt like a luxury and was so much appreciated.

But when it came to getting meds, I was having them sent in the mail... something totally foreign to me. I stressed about the medications that were needing to be refrigerated, and how well they'd be packaged. Turns out, they've done this a time or two before ;) they know what they're doing. But I definitely had to do a lot of coordinating and playing middle man between provider, pharmacy and insurance. It was stressful, and confusing, a far cry from my little purple "gift bag" carried out with me back in Canada.

I'm now undergoing my next FET again here in the states. This time I further complicated things by moving states and having to do remote monitoring. Because you're not their patient, they don't seem as invested and take their sweet time getting results sent to your actual clinic. And then you have to play middle man also between the clinics ensuring one sends and the other receives. On top of it, prescriptions are further complicated when they won't ship from state A to state B. Intralipids!? Forget about it... can't be prescribed by an out of state doctor. The hoops I'm having to jump through this time are absolutely shockingly ridiculous. I'm not sure how it would have worked as an out of province in Canada, though I'm sure there'd be hoops there too. I would have happily just lived in NY for 2 months, but as you can understand, that's not exactly a cost-effective option.

Anyways, my point is, there are always pros and cons to each system. Decide for yourself what's most important to you to make your call. Anything I missed?

CANADA PROS
- pharmacy on site
- clear instructions and overall helpfulness
- ease of insurance (no playing middle man)
- clear costs
- nice facility

CANADA CONS
- long wait time
- only one clinic
- rarely see own doctor
- no email communication access
- out of pocket IVF (no coverage available)*
- coverage for meds dependent on your insurance plan
- refusal to try experimental testing/treatments

USA PROS
- short wait times
- choice of clinics
- see own doctor each time (generally speaking)
- email accessibility
- IVF coverage available (dependent on insurance)
- openness to new (perhaps experimental) tactics, testing and treatments

USA CONS
- IVF and Medication coverage entirely dependent on insurance (no equality in treatment)
- unclear out of pocket expenses
- dealing with confusing insurance providers and pharmacies
- bills
- US attitude (this is a thing... service providers by my experience have been quite a bit friendlier in Canada)
- having to be a much more active advocate in your care/service
- price gauging on medications

* my understanding is that certain provinces are starting (and some already have) to offer coverage for limited cycles. 

Tuesday, 30 August 2016

Reiki Reactions?


As infertiles, we're willing to try just about anything to stack the odds for success. That is one of the reasons long ago I began looking into holistic health and wellness practices. Diet being one of the first and most important contributors for me personally. I also tried various form of "holistic" treatments including acupuncture, craniosacral massage, and reiki.

I have been interested in learning Reiki since I first received it years ago while struggling through this whole infertility journey. It was a pretty profound experience then, and I believed my body was working through some things. I have since had sessions with various practitioners (some better than others as is always the case). Over the years my body has in fact gotten to a happier healthier state, though I admit, there are a lot of contributing factors... But as you take on all these infertility treatments; pills, injections, exams etc etc... it's nice to have a treatment that feels gentle and supportive. Some people love and swear by acupuncture... I could never really fully get on board with it. I tried... for one it didn't seem to help me all that much, and I also hated going. It felt like an annoyance and I didn't really "relax" during the sessions. It caused me a bit of anxiety being pricked with even more needles (when I was doing it daily for fertility drug injections and blood draws).

Due to recent studies (link1, link2) that have shown benefits to acupuncture, more and more REs are encouraging or supporting patients to pursue it in tandem with fertility treatments and IVF cycles. Personally, I have to believe that reiki has the same effect. By gently getting the energy moving through the bodily more smoothly/efficiently, and breaking up blockages, I believe the patient is getting the same result that acupuncture promises. Call it an airy-fairy wishy-washy theory, but if you haven't experienced reiki before (at least from a qualified and experienced practitioner) I strongly urge you to look into it.


Anyways, I believe, and I guess that's all that matters in my case, whether placebo or not. So this past weekend I went on the journey to becoming a practitioner in order to help myself first and foremost, but also others on their healing journey. There are 4 levels of Reiki training, and this was just my first. Basically we learned about the history of Reiki, the principals. How to give ourselves treatment (hand placements etc), and also how to give to others. In addition, we receive something called Reiki Attunements. In total over the course of the weekend we received 4 attunements which basically "plug" you into the energy. Again, I know this may sound a little far fetched to some, but experiencing is believing so don't knock it until you try it. It was pretty intense, and I experienced a wide range of physical sensations and emotions throughout the attunements. In particular a blockage I've felt in my right trapezoid for years was being released... towards/through my ear, no less. So it came as no surprise when I woke up the next morning with a massive ear ache.

The belief is that after receiving the attunements, your body pushes out the old dense energies and makes room for the lighter brighter reiki energies. Great... this is a good thing, and hopefully will aid in my overall sense of well-being... however that meant first I was going to get sick. Very sick. I had a horrible flu with aches, chills, fever the whole kit and kaboodle. In addition of course was the ear ache and a very swollen gland all on my right side. Coincidence? Maybe... but seems pretty crazy that first I feel the energy releasing that way and THEN it actually manifests in the physical.

I'm starting to feel better today which is nice. My ear still has a mild/dull ache.. not as bad as before, and it feels plugged, but the flu symptoms seem to have dissipated. I'm hoping that once I'm healed I'll have released that which no longer serves me and be on a path to feeling healthy and full of vitality!



Saturday, 2 April 2016

Day 13

ALL DONE SHOTS!!!!!! Yipee. Homme InFertile gave me my trigger last night and all went well. Now we wait.

So today is a lazy day. Because I'm at risk for OHSS I'm on self-prescribed bed rest. My ovaries just hurt too much when I walk so I'm talking it very VERY easy. I feel like a total lazy slob but its what I feel I need, so I'm just honoring that.

Tomorrow a.m. I go in for my egg retrieval. Not too too nervous about it, very relieved to be being put to sleep for it, and less scared of that whole process since I did it for the endometrial biospy. Homme InFertile finally has a job to do... time to step up to the plate... or uhhh cup I guess ;) haha. At least I think I'm funny ;)

Anyways, neighbour is practicing his saxophone and it is utterly beautiful. Turned off the TV and just listening to it with the windows open. NYC living at its finest.

Super excited to hear about how many eggs (mature and otherwise) they get tomorrow, and more importantly how many fertilize. I got all cray cray and gave a very detailed plan for fertilization. Here it is...

18+ Mature Eggs                   1/2 and 1/2 (rounding up to Natural ie. if 19 mature, 10 natural fert, 9 icsi)

16-17 Mature Eggs                8 ICSI, remainder NATURAL

12-15 Mature Eggs                7 ICSI, remainder NATURAL

8-11 Mature Eggs                  6 ICSI, remainder NATURAL

7 or less Mature Eggs           ALL ICSI


My ideal (but as realistic as I can be) situation is as follows:
  • Eggs retrieved: 20
  • Mature Eggs: 18
  • Attempt Fertilization: 9 ICSI, 9 Natural
  • Fertilization Successfully: 6 ICSI, 6 Natural
  • Make it to day 5: 4 ICSI, 4 Natural

That would mean we'd have 8 total to work with. Don't feel I need much more than that! 
Again, this is a very ideal (but hopefully realistic) outcome! I have no idea how my eggs will fertilize naturally. In the past the ICSI fertilized at about 1/2 rate (we got 7 mature eggs, 4 fertilized) and although we put 2 in on day 3, the other 2 made it to day 5, so its possible if they fertilize well more could progress.... 

Anyways. Time will tell. I'm getting ahead of myself... I'm just excited!

Friday, 1 April 2016

Day 12 (10 of stimms)

Had final BW/US checkup today and all eggies seemed to have grown. Huzzah! I'm ready to trigger tonight. Really nervous to allow Homme InFertile to do it for me but he's up for the task so we're going to give it a go. My last trigger was during my very first IVF round and I believe it was in the stomach and I gave it to myself... This will certainly be a trust building exercise for us.


Today the doc found 22 follicles, though it really seemed like at least 2 of them were re-counts. Fingers crossed those were our genuine numbers. I'm hyper-stimulating unfortunately, so been advised to have lots of fluids and take it very easy. I feel like my ovaries are just going to burst out of my pelvis. No jokes... not fun.


Went to acupuncture which I felt super sensitive to today for whatever reason. I guess lots of hormones in my body and its already all sensitive... anyway, wasn't the most pleasurable going in. Time flew by though and now I'm at home resting up.

Feeling a little dizzy, not sure if its from the cipro or what. Will have to have a nap and set an alarm for my trigger as I'm very VERY sleepy.

So short but sweet post today as I'm not feeling super chatty. Egg retrieval scheduled for Sunday.

Thursday, 31 March 2016

Day 11 (day 9 stimms)

Intralipid time...

So today was a gloriously lazy day. Without my friend in town, I turned into the ultimate couch potato.. and unapologetically so. Hubby was super sweet and brought me to my intralipid appointment and hung out with me.

When we got there, the nurse brought me into the room (hubby had to wait outside) to hook me up to the IV. I got super lightheaded when she did it, even though she was super gentle, so I had to spend a bit of time slightly inverted to get blood flow back. Once I was hooked up she brought Homme InFertile in and we set up the laptop to watch a movie.



We rented a documentary for 99c, not because we're cheap but because it intrigued me, it was called Barista and was about 4 individuals headed to national barista championship competition. It was pretty good, and passed the time nicely.


In terms of the intralipid itself, my hand got a little numb/cold from laying it so straight and not moving it for so long.


Also the intralipids made me super sleepy so I really had to struggle to stay awake. All I wanted to do was sleep. Though I'm not sure if that's just me catching up from the busy days with my friend in town. I'm still super sleepy and its only 830pm but I have to wait up until 9pm to do my shots. Oh goodness I'm getting old haha.


Anyways, fingers crossed that the intralipids do the trick and we're successful. I'm back to being super bloated/constipated so I kinda waddle when I walk. Every step feels like a ton of bricks in my ovaries crashing around... not so pleasant. I go back in to the clinic tomorrow for ultrasound and bloodwork to see progress from Wednesday. I feel like theres definite progress, but that could just be the constipation bloat. Who's to say. We'll have to wait and see. I'm super nervous/excited to find out how things are moving along. Part of me doesn't want to trigger tomorrow, because my doc is back at work Monday, and if we trigger Saturday instead then he'll be able to do my retrieval himself. Just would give me more piece of mind, but I'm trying really hard to just have faith. 

Wednesday, 30 March 2016

Day 10 (8 stimms)

DAY 10 - day 8 stimms
Ganirelix done. Check.
Ultrasound done. - - -> My 21 follicles lowered to 17 (I guess some of the 5mms just dissipated). Disappointing, but still solid. Hoping all 17 hold strong.
BW done. - - -> Good to continue with same dosages, and am going back in Friday for another check up. I'll probably be ready to trigger Friday night it looks like. That'll make retrieval Sunday, Transfer Wednesday or Friday of next week.

I had another different doc today. I guess it truly does take a village. I liked her a lot better. Might try requesting her for my Friday appointment and retrieval. She just had a much warmer demeanor in my humble opinion.

Was so fun having my friend in town to distract me, but now she's left just as I was getting more uncomfortable and closer to the finish line. I am a bit relieved to have some down time. I feel like I'm just going to hermit it up for the next little while through our trigger, retrieval, and transfer.

We found out we might have to go back up to Canada while our new USA visas are processed, which is a bit of a pain in the butt. Maybe we'll do it during the 2ww. That'll make for a good distraction I figure. Problem is, if they want us going sooner rather than later the timing is tricky and may be a quick turn around situation. That's fine too, and maybe better if it means I can fly instead of having to drive. No chance I'd risk flying in the 2ww. No sir.

I go in for my intralipids tomorrow. Really nervous about that. No clue what to expect, and who in their right minds likes IVs? No one. I'm hoping Homme InFertile can join me and we can cuddle up and watch a movie. We haven't really had any alone/chill time since my friend was in town. I wanted to be respectful to her as she's single and I know it can be hard being around super lovey dovey couples (which we are, but just not in public). So soaking up some cuddles tonight. 

Days 9 (7 stimms)

DAY 9 - day 7 stimms
Just another day in stimming paradise... or hell... whatever way you personally feel about it. For me, I'm trying to feel as much gratitude for being in a position to be able to be as proactive as we are. I'm grateful for 21 follicles growing. I'm grateful for the financial ability to do a cycle. I'm grateful for being unemployed and being able to focus fully on fertility. It helps a little to think of all the things I'm thankful for as my belly becomes increasingly bruised and my ovaries more and more bloated/painful.

Today was Homme InFertile's Birthday. 31! Wasn't anything overly special, but he had been wanting to check out this place Katz in NY (a staple) so we did lunch there, and while he went bowling with my friend visiting, and his friend who's also unemployed until they start their new jobs, I went to acupuncture. She seemed impressed at how well I've been doing/feeling, so that made me feel even better about everything... if that was possible.



I called to schedule my appointments for the next day (bw/us and intralipids) and got a lecture on how I was supposed to book intralipids weeks ago. I don't want to go into the nitty gritty of the conversation, as I'm trying to let it go, but basically instead of simply telling me unfortunately at this point there wasn't an appointment time left for Wednesday, but I could go Thursday instead (which I would have been totally chill and fine with... my bad for not calling earlier), I instead was told that I wasn't being responsible for not calling weeks in advance, and that's generally when people book these, and there are no appointments for today. So naturally I freaked out thinking I wouldn't be able to get an intralipid appointment time for 2 weeks, and thus started to cry. See I believe the intralipids are what could make or break this cycle so my mind started racing a million miles a minute. I just wish she would have handled the conversation a little nicer and preceded the lecture with "I can fit you in tomorrow" at bare minimum. No one told me the precedent on timing to book intralipids, and all other appointments I have been making a day or two in advance. Without this knowledge, how was I supposed to know any different, especially after checking on Monday that they received my intralipid medication, and that all was good for Wednesday... which clearly it was not. Grrr. Very different "service" level in the U.S. from Canada. They try and make it as stress-free as possible, where as in the states, its all on you the patient at an already overwhelming stressful time. Kind of silly, but cultural differences I suppose.

Shake it off.

Later we went out to a nice dinner followed by Les Miserables on Broadway which was A-M-A-Z-I-N-G!!! So great!

I had to push my evening injections to 10:15pm (I normally do at 9pm) as I wasn't sure how I'd go about timing it, doing it in the bathroom at the theatre, not to mention bringing the injections and keeping them cold (the gonal-f needs to stay in the fridge). It was all too stressful, so I just did it a little later. RE said it was fine if they weren't exactly at the same time, although that is ideal. FX all is well. I'm sure I'm not the first patient to do an injection an hour off schedule one day.

Anyhoo. Shots were less painful than the previous day which was nice. I'm a pro now it seems, although I still friggin hate my ganirelix injection which I'm delaying taking as I write this. Boo.

Monday, 28 March 2016

Days 7-8 (days 5-6 stimms)

Wow have things progressed. Getting real ya'll...

DAY 7 - day 5 stimms a.m. & p.m.
So yesterday I continued with my a.m. ganirelix and p.m. gonal-f and menopur shots. My stomach has little prick marks along with mini bruises where I clearly did a less than stellar job injecting myself. Oh well. I'll be a pin cushion if it means I have a baby!!!

Yesterday was Easter, so we started our morning off with Easter Brunch at Lafayette in New York. Delicious little brunch with some friends and then we headed over to the bonnet festival which is a street filled with crazy New Yorkers in crazy hats. So random, but quite a spectacle. We then tried to get lottery tix to a broadway show, but after no such luck, walked across the Brooklyn Bridge instead. So needless to say, it was a busy day and I was just beyond pooped. We had a chill night and went to bed reasonably early.

DAY 8 - day 6 stimms a.m. & p.m.
Maybe it was me pushing myself to hard, maybe it was the meds, maybe my IBS, or maybe even something I ate, but I tossed and turned with a stomach ache all night, and woke up with diarrhea around 6am. Annoying since I had been incredibly constipated for days. I guess the relief was welcomed, but the stomach cramping not so much. Sorry for the TMI but I don't believe in such a thing on this journey ;)

So my day started off a bit rough since I wasn't feeling great but we had to go to my check up appointment at the RE. I was super duper nervous, having been a poor responder in the past. I trusted my doc lowering my meds, but at the same time was just really hoping it worked out well. My friend came in to the room with me for sheer curiosity more than anything. Was quite the learning experience for her.

Well the doc covering for Dr. T was fine and dandy, but not overly personable. I like someone I can joke with and they all take it a bit too seriously for my taste. Fair enough, as they need to be sensitive to all infertile types. I support that... but still, when I crack a joke, at least crack a smile ;)

Anyways, had 21 follicles. Yes!!! 21!!! I was thrilled!!! Our first IVF was only 11 so we almost doubled our amount and I couldn't be happier. Many of them are still quite small, so I'm not sure how many will mature to size, but I still feel confident we'll get a good yield and may be able to go for a day 5 transfer. Fingers crossed.

I felt completely drained today and tried to be a trooper but had to take a mid-day nap to recuperate. My ovaries are just so sore. I feel like I need to invent shock absorbing shoes for women going through IVF. I swear with each step I could feel them slosh around in my ovaries. Ouch. I'm okay with it if it means I have 21 great eggies in there. Feeling positive vibes today. :) :) :)

Sunday, 27 March 2016

Days 3-6 (1-4 of stimms)

DAY 3 - day 1 stimms (p.m. only)
So I've clearly not been keeping up my blogging duties, but I've definitely been busy busy with all the injections and pill taking.

So first night of stimms I was so so nervous. Like, had no clue I would feel that way given I had done it before. I wasn't nervous to actually give myself the needles so much as just mess it up somehow. My hubby took some video of me doing it all which I might try and cut down and post below at some point if I get a chance, but forgive me if it never happens as I'm a little distractible at the moment and the full video is like 20 minutes long since I was such a nervous wreck.... No one wants to watch 20 minutes of me pouting haha.

:) possible video placeholder :)

I got it all done in the end and went to bed feeling pretty proud of myself. Plus... we had officially begun our cycle of IVF stimms and I was looking forward to moving forward. Yay.

DAY4 - day 2 stimms (p.m. only)
I woke up day 4 (day 2 of stimms) feeling pretty a.o.k. I didn't sleep great, a bit of tossing and turning as the meds started coursing through the ole body. I went about my day quite normally. Then Homme InFertile got the call. HE GOT A JOB!!! So if you've been following my blog you might know that we are Canadians who moved down to New York for his job. Well, oil and gas markets essentially crashed and the company layed off his whole team (and many others). Since he was sponsored to work, and that job no longer existed, we were in fear of being deported. All this as we had started IVF. Ridiculous amount of stress. All of that was lifted with one phone call. Phew. That being said, we're Houston, TX bound next. His whole team got picked up so we'll be moving with people we know which is nice... and best of all is that we get another 6 months in New York while they ramp up coverage. That means I get time to finish IVF (and a frozen if needed) before leaving, as well as take time to say goodbye to this great city and do all the things off my NY bucket list before we go! So great! 

So we were off to the boss' to celebrate... just one hitch. I had to do my shots. Luckily everyone knows our situation so I just brought them along for the champagne toast and shot myself up in their living room. Infertility accommodates no one ;) 

I feel it necessary to include a little commentary here on that whole situation though in case you find yourself in a similar circumstance. Now know, although my husband works with these guys, 1 of them knows me better than the other, and neither of them are overly familiar with me yet, so comfort levels aren't incredibly high. One guys wife, although very sweet, I also don't know all that well... so this wasn't exactly a group of close friends if you get what I'm saying...

So what I found interesting was their curiosity and wanting to look/stare, but their blatant efforts to not! I tried to crack a few jokes to make everyone more comfortable, and they gave me a few kind chuckles to break the awkwardness, but you could definitely sense they didn't know how to act. Totally fair. Now I could have gone off to the bathroom and done it in privacy sure. But I'm pretty stubborn and believe I shouldn't have to hide my life. I don't do it in the bathroom at home. I do it in the comfort of my living room, perched on the couch (or in my bed for the morning shot this morning that I'm writing). Not only that, but I WANT them to see what it's all about. I WANT people to understand what an infertile or person going through IVF goes through, because for the most part, it happens behind closed doors, and under hushed voices. Me? Infertile here loud and proud. I refuse to let someones discomfort with it be the reason I don't educate and break down the stigmas. So there you have it. Everyone in that room now knows exactly what IVF injections look like, and what the woman has to go through with organizing, timing, mixing (lupron/menopur I'm looking at you!) and actually self-injecting. 

DAY5 - day 3 stimms (p.m. only) 
Today my friend arrived from out of town. I went for acupuncture beforehand, and the hubs and I went for a game of pool with one of his other unemployed but soon to be re-employed colleagues. I was still feeling pretty good, although a little more bloated and uncomfortable again today. Acupuncture seemed to have helped a bit there... I listened to circle and blooms IVF program while I had it done. Ahhhhh. 


When my friend got in we were able to go grab a quick bite before having to head home for my nightly shot. Once again, I know she felt discomfort. This is a friend I know very very well, and have been friends with for years, but we haven't lived in the same city since we were 18 (we're 31) and although we know each other very well, the comfort level may not be the same as it would be if we were around each other more often. Once she realized we could joke through it, and it didn't have to be a big serious thing, she loosened up, but it was interesting for me to see the same sort of behaviours and reactiosn as the previous night with Homme InFertile's work colleagues, as I did with a close friend. Huh. 

DAY6 - day 4 stimms (a.m. & p.m.)
Woke up this a.m. knowing I had to add Ganirelix to my regimen. Wasn't so worried about it. No biggie. No mixing... no adding/changing needle heads. It's prepared for me and ready to rock and roll. WELL...... little did I recall this is the little guy that stings like a ... well stings bad lets just put it that way! I forgot the little trick that my last clinic/nurse taught me of pre and post icing. I just went in without a care in the world. Ouch!!! My stomach was quite red and a large circumference stung. I grabbed ice and remembered it was my friend, making a mental note for all mornings to come.

We spent the day out and about. Homme InFertile had to go meet with new boss for lunch, and a few other things came up for him, so it was just my friend and I out playing tourist. I got to do some things in NY I had really wanted to do for some time (aka boating on the lake in Central Park, and taking the boat cruise around the Statue of Liberty). We came home, had some down time, played a board game and I took my evening shots before heading out again. 

Well... evening shots have taken a turn. A dark, dark turn. Eep. I dunno if it's because of the added morning shot or what, but my evening shots SUCKED. Not only was my stomach all of a sudden way more sensitive, but about 10 minutes after taking them I looked 4 months pregnant. I'm a pretty skinny minny, so I understand this doesn't look like much, but I'm generally completely flat. The bloating was sooooo painful. Felt like my insides might pop like a balloon if I sticked myself with another needle. 

But the show must go on so we went out for dinner where I stuffed myself further and felt even more bloated, and then showed my friend Time Square before heading home and me collapsing in bed in pain. Hosting during IVF apparently is a no go ;) I should have known, but at the same time, the distraction is kind of nice. 

Tuesday, 9 February 2016

Biopsy Results

They're in, and they're less than ideal....

ENDOMETRIOSIS


It was definitely something we've been concerned about, but the firm diagnosis makes me sad.

I don't have much to say at this point in time other than we're not doing a laparoscopy at this time. Diet seems to minimize symptoms and no firm proof that surgery improves fertility rates. In fact, the risks seem too high for the potential reward.

Hubby has sperm analysis and culture today, so we'll see those results and have a better picture after his urology follow up.

Head is spinning. Need time to process.
On top of it, work is insane (I'm doing casting for fashion week) so I have a lot distracting me at the moment. Too much going on all at once.

In positive news, I splurged on a new purse to lift my spirits. I give you, the consolation prize:


I'm sure I'll be back soon with more to talk about... but for now... just keep swimming... just keep swimming... 


Monday, 18 January 2016

"I feel drunk"

So today was the day I've been waiting for... dreading perhaps, but also excited to get done. My biopsy day along with SHG and trial transfer.

I couldn't eat past midnight so last night made a late dinner, nice and healthy, and ensured I drank lots of water before bed. I was feeling prepared and organized and proud of myself... that is, until my husband FaceTimed me. I could feel his guilt, and I tried to hold it together to not make him feel any worse, but my anxiety got the best of me and started tearing up, unable to speak. I had to hang up... it was just making me think about it all too much and I just wanted to go to sleep and wake up the next morning and get the show on the road.

So that's what I did. I didn't have the best sleep, which isn't surprising given my stress about it all. I woke up before my alarm, worried it wouldn't go off. Neurotic much!? I had a nice long cuddle with my pup. It's like a real life teddy bear!!!


Then I got myself organized and my mom and I headed down to my appointment. I didn't realize it was a holiday (being Canadian and all) and so we ended up being there really early since there was no traffic. When we got there I checked in and sat in the waiting room. Was nice to have someone there with me.


Then a nurse came out, called my name and brought me back. She was really sweet, gave me overly detailed instructions, and then left me to change. I was lookin' and feelin' pretty sexy ;)


She came back and had me fill out a bunch of paperwork - really I couldn't have done this when I had underwear on? Once that was done she put in my IV (ouch. not fun) and I was thankful she was gentle with me. I think she felt bad that my hubby wasn't there with me and that I was so visibly anxious (I couldn't stop tearing).

Once I had my IV in I had a bit of waiting time. DH texted me, only making me more emotional, and then to top it all off the first song we ever danced to came over the music sound system. Floodgates opened. I rely on him so heavily, but he really is truly my best friend and anchor and I would have loved to have had his hand to hold up until the procedure. Oh well.


My anesthesiologist came to give me the rundown on what to expect, asked me if I was allergic to any drugs (this was the 4th time I was asked today... clearly they've had a problem with this in the past haha) and then got my stats - height/weight etc. to calculate dosage I think. Then he took me into the room.

Best part? I stood up forgetting my butt would be hanging out and he had to kindly close my back for me. I clearly was so consumed in my fear I didn't even feel the al fresco situation going on in the back. Oh man.

Then we got settled and doc came in and went over our procedures, had me repeat back to him what I was having. We were talking and the last thing I remember is me telling him he was going blurry.

Then I woke up... feeling... very confused "How did they get me here?" I asked my mom, now sitting in the room. She didn't know but just laughed at me with my eyes halfway open slurring my words. "I feel drunk" I said to her. So she took some pictures of me to send my DH to let him know I was alright.
Looking goooooood haha
"I feel drunk... but I'm good!"

I had zero pain. zero nausea. And soooooo much relief. Once my nurse gave me a juice to help me refresh, and sat me up, my doc came in to debrief.
mmmm juice. Nurse offered me a second because I downed it so fast.

1) SHG - no concerns. no polyps. totally normal looking. this is good news! :) yay
2) biopsy - went well. test results in about 10 days or so
3) trial transfer - issues as expected... he had to pull with itty bitty forceps on my cervix to straighten out the path or something to that effect, and then he was able to get in. He could see why my past transfers were noted as difficult, and has a plan of action going into our future transfer now, so good thing we did it!

So that's it for now. The waiting for this "horrible" but in the end, easy peasy simple procedure is over. Now the waiting for results... That I can do. All my anxiety is gone and I feel so much better. Especially after my nap with my fur baby again. Dogs are the best!
nap time



Friday, 15 January 2016

Bloodwork cancelled!

Hey all... so my clinic called me as I was on the way to my appointment to have blood work done for immune and NK testing. They didn't realize their lab doesn't do that specific testing on Fridays....






REALLY?




ARE YOU KIDDING ME?





WTF?

These were the emotions and thoughts that rushed through my mind. I've been waiting a while to do this test, and we picked a day and time that was most ideal for my hubby (all appointments are between 9 and 11 am and he works). Had we KNOWN in advance that blood testing for NK and immune wasn't doable on Fridays we obviously would have scheduled another day earlier this week because....
.... he's away for a full week starting tomorrow. This pushes EVERYTHING back. So frustrating. I took a few deep breaths, whoosawwwwd a little (if you don't know what I'm referencing, it's from the movie Bad Boys haha) and then once I calmed myself sent this email to my doc:

Good morning Dr. _____,
My husband and I were supposed to come in today to get blood drawn for immune testing but were called last minute to be advised that it cannot be done on Fridays.
We were somewhat disappointed we were told 30 minutes before our appointment especially since my husband is away all next week. Had we known in advance, we could have done this another day earlier this week. Disappointing as this is, mistakes happen and we just want to put together a plan to move forward and I'm trying to decide whether at this point we should bother.. so a few questions would help us if you don't mind...
I noticed in some of my research that sometimes NK activity can be recognized in the uterine biopsy. Is this true?
Is there a difference between localized NK activity in the uterus versus the bloodstream?
What information would we be gaining from this testing that would alter our protocol other than possibly a steroid like prednisone or intralipids? ie. what information from Eric's or my test results would contribute to a change in approach?
In your professional opinion do you feel as though this immune testing is of high importance to our treatment? or will it depend on what results come of our biopsy/shg?
On a separate note:
What is the cost for PGS? We are considering the possibility of doing it if we have a high embryo yield.
Is PGS something we need to decide on prior to beginning our cycle, or is it something that can be flexibly added/removed as we progress?
Thank you, as usual, for your time and expertise! :)
Now hopefully I came across as a calm, sane person (inside I didn't feel that way haha). I'm a little hot headed sometimes and out of principle hate when people are stupid. I felt like this was one such instance, but not sure who the stupid individual was... haha whooosawwwwww ... let it go. poof. gone.

I did NOT mention the funny thing. What's the funny thing you ask? Well the funny thing is that all morning I had been questioning whether this was a road I really wanted to go down. Do I believe in Intralipids? Do I think its the answer to our infertility woes? The fertility industry is very torn on the topic, more heavily weighted against it with articles explaining elevated NK could be related to stresses from the blood sample drawing, to the fact that elevated NK are existent in perfectly fertile couples, to little to no evidence or correlation to therapies used and positive outcomes. I mean its all over the place. Do I want to be successful? Yes. Do I want to sit and get multiple IVs and pay out of pocket for it if I don't need it? No. Do I want to pay $500 out of pocket just to have the test when I don't know if I even want the therapy or believe in the validity of it? BLehhahghhh... I dunno!?!!? NO?

Why is there so much for an infertile to decide about!?

So moving forward, Monday I still have my biopsy/SHG/trial transfer, and part of me believes that's what I need. Honestly... part of me thinks my uterus just needs a good scratch, clean out, and ripe new start. I dunno. I feel so confused right now.


*****
update:

Doc got back to me. I think we'll forego testing and if the therapies are covered just go ahead and do them. We're only doing 2 more transfers tops at this point, so might as well go all in and give ourselves the best chance possible.
I also read this blog post of another gal, and it encouraged me to just give it a go. Never know.

Tuesday, 12 January 2016

To PGS or to NOT PGS... that is the question...

So I count myself incredibly fortunate to not only have amazingly supportive, intelligent friends to discuss my infertility journey with, but also one in particular who not only once upon a time offered her own womb to grow my child (you kidding me!? amazing) but who is also a genetic counsellor. Let's call her Genetic Gina. Genetic Gina is super smart, always has been. I've known her since primary school, though I recall our friendship really blossoming in grade 8. Genetic Gina has always been someone I could count on for good, solid, well thought out, and logical advice, and yesterday was no different.

Now I don't like to take advantage of my friends, so was hesitant to reach out at first, but knowing she's also not one to pry into my personal life (she herself is very private), I felt that if I didn't just ask we'd likely never talk about it. So I texted her to see if she'd be open to having a phone date to discuss the pros/cons of PGS and what her thoughts were for my particular circumstance. She of course said yes, which I was super grateful for.

Now most of my friends have no idea all the terminology and vocabulary used in IVF and fertility/infertility etc. Genetic Gina is of course different, working specifically in a fertility clinic as a genetic counsellor. So its such a nice experience to talk to a professional, who is also your very dear friend who has a vested interest in your outcome.

We started out by me explaining that it is something we are considering given our "unexplained" diagnosis. At least, unexplained recurrent IVF embryo implantation failure...
So I said that our doc believes in immune issues and I really believe that's a source of my personal problem, even knowing she's very logic/science driven and probably herself doesn't stake much weight in intralipids etc. I skimmed over it quite quickly and explained that should that testing come back negative, we are strongly considering PGS, and wanted to know if its something I should consider regardless.

Her take was basically that if I was willing to do more than the 2 cycles I'm planning (1 fresh, 1 frozen) she'd say maybe not due to the high cost and our young age. But since I'm only planning on stimming once more and then doing a frozen transfer if needed, she suggested that if I have a high yield of embryos that it would pinpoint the best place to start and would be a good way of ensuring the best possible outcome. Ultimately, if I get 10 or so eggs and we have the money, she says go for it. If we only have 5-8 eggs she says maybe consider doing an additional cycle instead. All really good advice and hard to put into words on this blog.

Anyways, a lot of our decision is going to be based on how our tests come back, and how our yield is. So its really just sit and wait until we know more at this point. But I definitely have a better sense of my plans based on various IF___ THEN___ scenarios. And on top of that I know I have her to chat to about my decisions anytime!

Just feel pretty grateful right now.

PS> if any of you are interested, here are some articles about PGS/PGD that she forwarded me to help me make an informed decision.






xx

Saturday, 9 January 2016

3rd Times a Charm

So first check up I was realistic, I knew I'd need to go a second time. But then being told to go a third within a week (just tracking ovulation) kind of sucked. My body never cooperates.
So Friday (yesterday) I went back. Same old routine ensued... Vaginal Ultrasound (brrr that freezing cold blue jelly is sure to wake you up!), then bloodwork (always the same vein), and then me sitting sipping green tea latte because I get faint.

DAY 3

THE FAVOURITE VEIN WINS AGAIN

ROUTINE GREEN TEA LATTE

Because I experienced a temperature dip that morning I was hopeful I was ovulating on my own. The eggie was nice and big and all the other follicles had diminished, so it was looking like I wouldn't have to have the ovidrel shot to induce ovulation.

I got a call later in the day telling me my blood showed no surge and I would have to take the shot. BOO! My body continues to be on its own timeline haha, which I'm fine with... I'm a little slow moving myself, but not ideal for the eggie health I guess. I dunno.

So I went to the pharmacy and dished out a hundred bucks for a shot to tell my body to release the egg. This is when I really started to get cranky. I've spent a good 2 hours total this week at the doc office to track ovulation, which never happened, and am now dishing out money to make it happen, all the while being "rewarded" with injecting myself with a needle of hormones. Oh needles... how I haven't missed you... Yay. :|

THE SHOT

FAT TISSUE SQUISH



THE ITTY BITTY TEENY TINY WOUND
NOT SO BAD
The shot itself was totally fine. Not nearly as bad as the HCG shot to trigger release that I had for my first IVF. I remember it was so big I had to ice before and after. Maybe this one was smaller because I only had 1 egg to release... not sure. Fingers crossed its just gotten better in my absense and this is what I can expect during my upcoming fresh cycle cuz that was easy peasy lemon squeezie!

THEN... duh duh duhhhhh... the hormones started kicking in. As I said, I was kind of cranky to begin with, but then it was a whole new level. I think I'm super sensitive to drugs, but I started feeling uber angry at my husband (no good reason whatsoever) and emotional. So I went to bed, deciding that was just in everyones best interest haha. But then I couldn't sleep. I was hot, I felt like my skin was crawling, and some crazy ass dreams to top off a horrible nights sleep.

I woke up this morning feeling better. I definitely think I'm ovulating as the ovulation pain has increased slightly, so drugs must be doing their job.

Biopsy is now scheduled for Monday January 18th and my DH (darling husband) is going to be out of town. My mom is trying to get a standby buddy pass off my stepsister to come out and take care of me as I'll be under anethesia for the biopsy, SHG and trial transfers. When I come out of it, they want you to have a chaperone, and although I now have a few friends I could probably count on, its happening mid-morning and they all work. Anyways, hopefully my mom can score a pass, otherwise i'll just suck it up and take care of myself. Us infertiles are tough beasts! :)

Thursday, 7 January 2016

Testing Phase

So the testing has begun. I went in on Monday for my first check-up at RE to be monitored for ovulation. Once I ovulate, we schedule the biopsy for 10 DPO (days past ovulation). I've been stressing because I really wanted my husband to take me as they're putting me under in order to do the biopsy, SHG and trial transfer all at the same time, just to make things easier. Unfortunately he'll be away for a week starting next Saturday, and so timing is super unfortunate in that my 10dpo looks like it falls right during that week. Of course it does.
DAY 1

Anyways, I went on Monday to start being tracked. I'm going to be sharing images of the whole experience from start (of testing) through stimming, through transfer and beta. Below is the view from sitting in my stirrups. Quite glamorous.
THE VIEW


THE VAGINAL ULTRASOUND SCREEN

TIME FOR BLOODWORK 

MY HOME AWAY FROM HOME haha
While at my first appointment, the doc actually thought I might be ready to ovulate on Wednesday and that he'd trigger me to ensure ovulation happens and that we know exactly when.
DAY 2

Well I go back Wednesday and no such luck... eggie just taking her sweet time growing. Brutal. Had I ovulated Wednesday, there was a chance the biopsy would get scheduled for next Friday the 15th (the day before my husband leaves). So doc says based on egg size, I needed to go back tomorrow (Friday) to get re-checked. Well this a.m. I had a temp spike which could indicate ovulation. The thing is, my body likes to psych me out, and I often have little random rises that don't actual signify ovulation. So who knows... and based on my egg size its unlikely, but it would be such an awesome miracle if that had of happened on its own and all works out.

If I have to go to the biopsy on my own, I know I can handle it. I'm a pretty tough cookie. I'm just a bit nervous about having any kind of adverse reaction to the meds that put me to sleep. I'd love if I had a network of support here during times like that, but we're newer to the city and although I have numerous friends (and I'm sure they'd be happy to check in on me), I just really don't know them well enough to have them see me at my sickest time. Plus, many of them don't know about our situation just yet. You don't exactly meet people for the first time and share that.. well sometimes I do, I'm quite open... but the depth of it and my sadness about it? no.

So anyways, I'm in a bit of limbo at the moment trying to figure out the date for this biopsy but I'm hopeful to have a definitive answer or plan tomorrow morning. I also called today and made an appointment for our immune testing, and that's now scheduled for the 15th. Yay! We'll see what our killer attack and sperm antibodies situation is like. Give us a sense if we need intralipids for sure or not.

It's looking like the absolute earliest we might be able to start our next cycle would be end of January which would be so incredibly exciting. I'm just not sure how quickly they get results back for all this stuff. If we don't have all our answers by then it'll be mid/late Feb which is totally fine... just a month away'ish.

Just so excited to get going on this journey again. Anxious to start stimming!!!! Gimme dem needles! haha!

xx