Hey all... so my clinic called me as I was on the way to my appointment to have blood work done for immune and NK testing. They didn't realize their lab doesn't do that specific testing on Fridays....
ARE YOU KIDDING ME?
ARE YOU KIDDING ME?
.... he's away for a full week starting tomorrow. This pushes EVERYTHING back. So frustrating. I took a few deep breaths, whoosawwwwd a little (if you don't know what I'm referencing, it's from the movie Bad Boys haha) and then once I calmed myself sent this email to my doc:
Now hopefully I came across as a calm, sane person (inside I didn't feel that way haha). I'm a little hot headed sometimes and out of principle hate when people are stupid. I felt like this was one such instance, but not sure who the stupid individual was... haha whooosawwwwww ... let it go. poof. gone.
Good morning Dr. _____,
My husband and I were supposed to come in today to get blood drawn for immune testing but were called last minute to be advised that it cannot be done on Fridays.
We were somewhat disappointed we were told 30 minutes before our appointment especially since my husband is away all next week. Had we known in advance, we could have done this another day earlier this week. Disappointing as this is, mistakes happen and we just want to put together a plan to move forward and I'm trying to decide whether at this point we should bother.. so a few questions would help us if you don't mind...
I noticed in some of my research that sometimes NK activity can be recognized in the uterine biopsy. Is this true?
Is there a difference between localized NK activity in the uterus versus the bloodstream?
What information would we be gaining from this testing that would alter our protocol other than possibly a steroid like prednisone or intralipids? ie. what information from Eric's or my test results would contribute to a change in approach?
In your professional opinion do you feel as though this immune testing is of high importance to our treatment? or will it depend on what results come of our biopsy/shg?
On a separate note:
What is the cost for PGS? We are considering the possibility of doing it if we have a high embryo yield.
Is PGS something we need to decide on prior to beginning our cycle, or is it something that can be flexibly added/removed as we progress?
Thank you, as usual, for your time and expertise! :)
I did NOT mention the funny thing. What's the funny thing you ask? Well the funny thing is that all morning I had been questioning whether this was a road I really wanted to go down. Do I believe in Intralipids? Do I think its the answer to our infertility woes? The fertility industry is very torn on the topic, more heavily weighted against it with articles explaining elevated NK could be related to stresses from the blood sample drawing, to the fact that elevated NK are existent in perfectly fertile couples, to little to no evidence or correlation to therapies used and positive outcomes. I mean its all over the place. Do I want to be successful? Yes. Do I want to sit and get multiple IVs and pay out of pocket for it if I don't need it? No. Do I want to pay $500 out of pocket just to have the test when I don't know if I even want the therapy or believe in the validity of it? BLehhahghhh... I dunno!?!!? NO?
Why is there so much for an infertile to decide about!?
So moving forward, Monday I still have my biopsy/SHG/trial transfer, and part of me believes that's what I need. Honestly... part of me thinks my uterus just needs a good scratch, clean out, and ripe new start. I dunno. I feel so confused right now.
Doc got back to me. I think we'll forego testing and if the therapies are covered just go ahead and do them. We're only doing 2 more transfers tops at this point, so might as well go all in and give ourselves the best chance possible.
I also read this blog post of another gal, and it encouraged me to just give it a go. Never know.