Showing posts with label infertile. Show all posts
Showing posts with label infertile. Show all posts

Saturday, 22 October 2016

We Be Stimmin'

Hey all... I'm running a limited time Shirt Campaign. I personally LOVE funny printed t-shirts. For anyone going through a fresh IVF cycle, or medicated cycle (or egg banking cycle or what have you), these shirts a fun way to celebrate the crazy that is stimming!!!

The campaign is running for a limited time. Basically if at least 5 people buy, then the shirts will be printed and shipped. It runs until Oct 31st and will be shipped within a week or two of that date, so this is ideal for someone cycling mid November or later!

Have a peak!

Share with your TTC sisters!!!!

Thursday, 6 October 2016

Energy Gone. Poof. Vanished.

Oh good golly.... I cannot believe that it was only two weeks ago that I had my Lupron Depot injection. Ugh. Knowing that this is going to last months is pretty discouraging, but hopefully all worthwhile in the end I suppose.

Truth be told, I chose to be on the medication, so I have a hard time complaining about it. I made the decision believing it was the best one for me, even having been forewarned of the side effects, so I really can't say I have any regrets. It just doesn't make the symptoms any easier to cope with.

My insomnia is pretty awful. Have a very very hard time falling asleep, I'm sleeping a bit better in the night but crazy bizarre dreams and tossing and turning a bit, but I wake up at the slightest disturbance, so once hubby is up, so am I (and he gets up eeeeeearly).

I'm not sure if it's just the insomnia causing my fatigue but I have like zero energy overall. I feel like a zombie. I feel very foggy and slow. A bit like when you have the flu, but I obviously am not sick. Actually... feels like the flu in a lot of ways really... the aches.... the hot flashes... Oh well.

Otherwise I'm just hanging tight at the moment. I flip flop between whether I should be getting surgery or not, but I have to believe that we made the right decision, and if this doesn't work, then surgery it is. We have to take the long game approach, but no more delays or breaks now.

I guess that's partly why I haven't been blogging much. Not much to tell ya. Oh... hoping to give the Autoimmune Paleo Approach a try. I have a few books.... we'll see. It might be pretty tough especially since I don't eat meat/pork. I've been putting it off but need to get my ass in gear. Any tips be sure to let me know! <3

On that note, gonna go make a fresh green juice.
Ciao for now!

Monday, 26 September 2016

Lupron Side Effects

Oh good golly miss molly... Lupron = no fun at all. So yesterday I was getting the full flood of the emotional side effects and then last night and today I'm having the physical ones starting up.

Lupron Depot Symptom 1 - STOMACH ACHE
So my stomach is a gurgling mess. TMI alert but generally my "system" doesn't flow too regular... now its the opposite problem. I feel constantly mildly nauseous.

Lupron Depot Sympton 2 - INSOMNIA
So was super tired... yet I could NOT for the life of me, fall asleep last night. Nor could I stay asleep. I was a tossing turning mess. Couldn't sleep in either. So the cycle continues with me being very tired today.

Lupron Depot Symptom 3 - NASAL CONGESTION
Okay, so I have allergies and have recently seen a massive shift in the volume of my nasal congestion. I have basically had none (between allergy shots, and an air purifier). Yet as of yesterday, more so today, I have a serious stuffy nose going on. I did a quick search and it doesn't seem to be correlated, but I'm including since everyone is different and I believe it has had this affect on me. I'll update if it turns out I have a cold or something else random I can blame it on.

Lupron Depot Symptom 4 - HOT FLASHES
So far I don't mind this so much. I hate being cold... so I'm not too bothered. Ask me in a few weeks.

Lupron Depot Symptom 5 - CLAMMY SKIN
So my hands are now permanently clammy. They have a nice sheen to them constantly. Hubby won't so much want to hold my hand anymore. Maybe I should invest in a nice pair of pretty gloves?

So far that's all I'm experiencing that I can tell.... the symptom list from web md looks as follows so who knows what the future has in store for me... I'm particularly looking forward to facial hair. Ya that sounds fun... NOT.

  • hot flashes (flushing)
  • increased sweating
  • night sweats
  • chills
  • clammy skin
  • tiredness
  • swelling of the ankles/feet
  • increased urination at night
  • mental/mood changes (e.g., depression, mood swings)
  • dizziness
  • injection site reactions (burning, redness, stinging, pain, bruising, swelling,abscess)
  • acne
  • increased growth of facial hair
  • breakthrough bleeding in a female child during the first 2 months of Lupron Depot treatment
  • weakness
  • nausea
  • diarrhea
  • constipation
  • stomach pain
  • skin redness/itching/scaling
  • joint or muscle pain
  • vaginal itching or discharge
  • breast swelling or tenderness
  • testicle pain
  • impotence
  • loss of interest in sex
  • sleep problems (insomnia)
  • rash (including a painful rash with fever)
  • memory problems
  • blisters/sores
  • facial swelling
  • vaginitis
  • weight gain
  • headache

Sunday, 25 September 2016

Batsh!t Crazy

Oh no.... so it begins. First I go to Starbucks and lose my sh!t at the woman for messing up my drink. Chalked it up to me being tired and not full awake yet. Fast forward to this afternoon and I literally turn into an angry mean warrior at Kroger. Homme InFertile had a serious look of fear on his face. Walk out to our car and burst into tears apologizing. Proceed to come home and once again in comfy clothes am a bright ray of sunshine.. until I cry again.


Holy hell.... this is one roller coaster. Lupron Depot... you and I are friends off. And yet... you're in my system for the next who knows how many months. I blame you ENDOMETRIOSIS. Hmm. Good times... gooooood tiiiiimmmmes.

CD3 Lupron Vlog

Hey guys...

Youtube channel is up and running and we've posted our first few videos. Subscribe and follow along!

Most recent video is of hubby and me tackling the ginormous Lupron Depot Injection. Spoiler alert: hurt like a b!&@#.  My arm was so sore I could barely sleep that night. Feeling a bit better today thank goodness.


So now we wait. Looks like I'll start meds etc. at the end of November, so a full few months of nothingness now. Hurry up and wait. Thus far I don't have any symptoms. Although I was super emotional/angry this morning when they messed up my green tea latte at Starbucks... so maybe that's a lie. Time will tell haha.

Friday, 23 September 2016

Frustrations

Okay really!?!?!?

So I go in for remote monitoring (US/BW) early this morning to get checked for the all clear for my Lupron Depot Injection which will basically put my body into a menopausal state (aka hormone crazy time, bone loss, aches, and no more reproductive cycle hoping to stall endo). Great. All goes well, I pay the $300 out of pocket (ugh) and then proceed to wait for my clinic to call with the results once they're forwarded.

I wait and wait.... no email/call. So finally at 3pm I email to follow up. I'm an hour behind NY so that's still 4pm and an hour before their end of day.. should be plenty of time...

They respond almost immediately asking where I had blood drawn. I immediately reply with all their info. Hmm... maybe it didn't get sent automatically.... good thing I followed up. 10 minutes later I get an email with my results saying I'm cleared to inject.

Okay... so I email back right away.... Does this mean that I inject today? Respond immediately simply
"yes!"

Alright so I've got my answer that I'm clear and approved to inject, and then instructions to do so today... but where?? I open the container and it says intramuscular... should I do it in the arm? the thigh? the butt? It says to be determined by doctor. So I email again... we're talking immediately (it's now 3:25 my time). No response.

I wait 30 min. 4pm I email again to follow up... they're going to be leaving for the day and I don't know how or where to inject this frickin thing!!!!!!

...no answer...

Finally at 530 my time I receive an answer. Do it the same as your hcg trigger intramuscularly.

So fine... technically this is answering my question. Sort of. But this is a stressful thing giving injections, making sure it's on the right day, doing in the right spot etc. Had they taken an extra moment when giving me the go ahead to do the injection, it would have been nice to either receive a phone call to let me know to go ahead, if there was a specific time, where to inject etc, and provide an opportunity for questions. But they're busy, I get it. So maybe don't respond just YES. Maybe take an extra few seconds and type out a response that includes instructions and maybe even if the mood strikes a dash of encouragement. It could be a simple copy and paste response as follows:

"We have reviewed your blood work and ultrasound from earlier today and you have been cleared to go ahead with your Lupron Depot Injection. This is to be done anytime from now to end of day. This is an intramuscular injection and should be done in the arm muscle. This is similar to that of the HCG trigger injection. Should you wish to refer to the video, you can do so here. If you have any questions or concerns just let us know, we are here until 5pm EST."

Anyways... maybe I'm overreacting, it's possible... I am PMSing after all, but I mean come on! We infertiles have enough stress going to appointments, billing, insurance, simply BEING INFERTILE, that we don't need the stress of lack of communication from doctors who just expect us to know things, thrown on top of it all.


UGh. Rant over.

Thursday, 22 September 2016

Appointment Tomorrow

Wow... so it's happening... things are getting underway again and I'm feeling a bucket of emotions. Excitement to be starting another cycle. Impatience that this cycle will take so long. Apprehension at the drug I'll be taking (Lupron). Anticipation of what to expect with the other drugs along the way. Butterflies at the possibility that this cycle could work. Fear that it won't. It's like a smorgasbord of emotions, most of which aren't pleasant. One of which.... hope... drives it.

So tomorrow I go in for remote monitoring at a clinic here in Texas. They just need to make sure I don't have any cysts and that my bloodwork (hormone levels) looks good before proceeding with Lupron injection. Costs $300 out of pocket for one measly appointment. Boo hiss.

Then once my doc has a look at my results I'll (or Homme InFertile will) administer the injection. And then we wait...

So if all goes well, looks like I'd be starting the meds for this cycle November 30th with transfer slated for December 15th. Fingers crossed all goes according to plan. Who knows how my body will respond. Eek. We just need to decide if I'll do monitoring locally here in Texas, or if I'll go to New York for a few weeks. 

Tuesday, 20 September 2016

Thanks!

Thanks to all that voted for the Hope Blog Award. As you may or may not know, I was selected as a nominee, however I just found out I did not win. Congrats to Shelley Who Writes who did! I'm a bit bummed, but I don't do this for awards, I do this for therapy (for myself) first and foremost, and as a support to those of my infertility sisters out there so they feel less alone.

That being said I DID start an instagram account today. Follow along @femmeinfertile !!!

Saturday, 17 September 2016

Waiting on CD1

So here we go again... sorta... in a new kind of way I guess. This next cycle I will be taking my first ever Lupron Depot shot. It is an injection that puts your body into a state of menopause basically and is thought to calm the uterine lining and any inflammation that may be present. Sounds promising but of course who knows if it's my winning ticket or not.


Unfortunately we have to wait and try and see when CD1 comes... see it's all about timing because the shot is a 3 month injection and then we set up for a Frozen Embryo Transfer and this all seems to align very close to Christmas... and of course there are clinic closures etc.

So we wait and see. If not this month, possibly next or at worst the one after that. I'm not tied to any of these timelines, I no longer feel this sense of urgency. I'm in no rush to go through all of the ups and downs again, but I AM ready.

I've been questioning a lot lately whether or not I should be getting a lap first (for endo). What I came to the decision of, was that surgery is risky, and if Lupron could work, why not try it first. But then you ask yourself, "but what if a lap is the answer and I'm unneccessarily wasting good embryos?"... but truth be told if I did lap, I might be asking the same thing of if I did Lupron. So let's just say that it's a coin toss. I have to be okay with the idea that BOTH may be part of my future. And that one vs. the other isn't going to make a difference. I have to just trust my gut and go with it.

I met with a beautiful (inside and out) woman off one of my support forums (Hi if you're reading this!) who encouraged me to follow my gut. She like so many others I've chatted with have been around the block just as long or longer than myself. Maybe not always in years passed, but in tests, and procedures and cycles etc. I just wish we could all have our happily ever afters. But it was nice to meet someone face to face and feel like I was understood. When my food came and it had cheese on it she immediately knew that I needed to send it back. See dairy for immune or endo girls is a no no. She didn't even need to know that I was also allergic to know that I shouldn't be having it. That's a refreshing experience, as small as it might seem.


Anyways... as I write this I am filled with hope, fear, anxiety, anxiousness and excitement over the prospect of getting back on the horse so to speak. The countdown is on... well as soon as CD1 appears I guess.




Friday, 16 September 2016

Terms

So I saw a post on Facebook the other day... from the account "Simple Reminders" and it was a story about a pregnant woman wearing a t-shirt with a rainbow over her belly. The story illuminated the fact that this term has become widely more understood, and therefore certain strangers knew instantly that this woman was indeed carrying a "Rainbow Baby". Beautiful of course, and great that awareness of miscarriages and pregnancy after miscarriage is becoming more widely understood and all, but it left me feeling a little empty.



Why? Because, well, like many others, I simply have never been pregnant... at all. And should I fall pregnant, there is no "term" for that baby I would be carrying. It wouldn't be a rainbow baby, no, because I've never experienced a miscarriage. But I HAVE experienced 5 years of infertility, failed treatments and months upon months of disappointment, heartache and crushing of dreams. So why when I get pregnant do I fall under "Pregnant after Infertility"? Not really glamorous, and honestly... those "rainbow babies" also fall into that category too. Maybe "Miracle Baby"? I've heard this term thrown around, but truth be told many other things also fall into this category... premies, babies born with some kind of illness or disease, babies born to women after going through menopause.

I guess part of the question I ask myself, is why do I feel I need to be defined by a term? Why is this important to me. I like to self reflect when I'm feeling angry or upset and really delve into the deeper rooted issue at play. In this case, I think why I feel so frustrated I'm not given a term is that I don't feel validated for the pain I'm enduring. 

Women who go through a miscarriage are warriors. They deserve all the recognition and celebration in the world for their little Rainbow Babies. I don't EVER want to take away from that. But at the same time, I want that recognition and celebration too one day... and it just doesn't seem to be a thing. And I find that disheartening.

So I'm brainstorming a moment here... what kind of term could we coin for such a thing? For women who have repeated implantation failure (in this case we'll specify that to include at least 3 failed transfers).

One idea I have is based on the quote "It's always darkest before the dawn."

Dawn Baby
Sunrise Baby


Next idea is "Risen from the Ashes" because we women of repeated failure feel like we die inside each and every time.

Phoenix Baby


Based on the calm after the storm

Storm Baby


Final idea is based on the fact Hope is eternal, and that we never lost hope, never gave in to failure.

Hope Baby


I'd love to hear any and all ideas anyone has.... or if there already is a term out there, I'd really REALLY love to know about it ;)






Wednesday, 14 September 2016

Weekend Getaway

Homme InFertile and myself took a belated Anniversary Trip to Orlando and NY this weekend. NY wasn't originally part of it but hubby had to go for work last minute and I conceded and joined him ... Though it didn't take much convincing.

I'm a super big nerd and have been wanting to go to Harry Potter World. Through treatment schedules and draining of funds, we just hadn't been able to make it happen. Plus we all know "pregnant women shouldn't ride" and well I kept hoping that I'd indeed get pregnant therefore rendering any plans useless. 5 years later with not a single positive hpt and I finally said screw it. So off we went. 

I was a little nervous about being around so many kids but the excitement and energy was infectious. Plus more adults than kids this past weekend I swear. I guess I'm not alone in my childish joy. 


Jurassic Park Ride though was my fav ride-wise. So much nostalgia. 

Also made time for some nice meals and poolside RnR. 

Then it was off to NYC which was exciting for me. I hadn't been back since we moved. Was great to revisit lots of my fav spots. 

Room with a view and room service was definitely a stark contrast to living there haha. 

All in all was great for us just to get away and reconnect as a couple. We've been through so much together: infertility, two massive moves, job loss etc, that it was much overdue. I smiled so much, and my heart felt fuller than it had in a long time. ❤️

So this is a great reminder to be sure to do things for yourself every now and again. It's so easy to be swept up in the infertility race that we forget to take care of the child inside ourselves. I'm glad to have been reminded of the importance of that this past weekend. 

Tuesday, 6 September 2016

Un'Supported

It's not a new topic, but one that we (Homme InFertile and myself) continue to revisit. Support. It was what my blog post during Infertility Awareness Week was about. (Ps. if you haven't voted and are enjoying my blog, I'd love your "support" ;) vote here). But support is something I'm realizing not only ebbs and flows, but is and always will be something we have to ask for, seek out, muster within ourselves, and accept the lack of. 

Support shouldn't be hard to come by, but for infertiles it often is. Perhaps because the topic of infertility is so taboo. Perhaps because the topic is so sensitive. Perhaps because the majority of people don't (and/or can't) really understand. Perhaps because many of the people in our lives aren't capable of giving the kind of support we need. Regardless of why... it sucks. And it hurts.

See being infertile means a lot of things. Your identity is thrown to the wolves, and you either let them gobble it up, or you fight to retain as much of it as you can. But no matter what, you lose a little bit of yourself along the way. You might be hardened by the fight, you might be broken and lost. Each journey is unique... and ever evolving. For me, I am constantly fighting to regain a part of myself. But what I've been learning is I have been changed. I can no more easily become the person I was before, than a soldier forget the war. I have never served in the war, and I cannot imagine what it is like. However, comparisons to the mental-emotional damage have been drawn by experts and I am not surprised. I feel like I'm fighting a war. Each failed cycle a battle lost. But the war forges on without an end in sight.

But I have my husband, and I remind myself how lucky I am to have him, how lucky we are to have such a solid supportive marriage. Some days we're enough for each other. Other days we're both down and broken and we need someone else to pick us up together. It takes a lot of strength to pick someone up when we too are broken, but that's what our marriage has become. I put my own pain, sorrow, misery on the shelf for a moment, and hold him in my arms and tell him it'll be okay. I tell him I love him, and support him. In that moment, no one is supporting me. Another day, and he does the same for me. It's survival. But it's not easy.

When you have been on the infertility journey as long as we have (5+ years) you notice that people you open up to and share your vulnerability with choose one of three paths.

1) Stop asking.
These are the people who don't know how to handle it. Our situation makes them uncomfortable. They don't know what to say, nor do they know how to ask what to say, so they just stop altogether. Maybe they themselves have gotten their happily ever after and life has become busy and overwhelming for them. They're not capable of supporting, so they don't extend the olive branch. Or maybe they harbour guilt, so they avoid the source. Maybe they themselves are also going through some sort of emotional life crisis. No matter the rationale, in my humble opinion, none of these are a valid excuse. If you love someone, "Stop Asking" is not an option. You're only further isolating those individuals and making them feel more alone, and unsupported. I don't stop being a part of my friends lives because I'm struggling. I still call up and offer support to any of my loved ones when they need it. I might not always be the best support, but I'm there, and they know I care even in moments I can't fully show it.

2) Ask. Provide support.
These are the people who may have experienced infertility themselves. Or they have had close friends or family members go through it. Or they are just damn good people who can put their own sadness/pain on hold and provide support to another person in need. These people are the ones who ask what they can do, even when they have no clue how to handle it. These are the people who check in, and call you just so you know you still have friends and family members who care. These are the warriors of our lives. Thanks to these people, we feel less alone, and know there is support when we need it.

3) Try and help.
These are the people who feel helpless and powerless watching infertiles struggle. They try and offer well-intentioned advice in an effort to fix our problems for us.  Having to tell them we've tried that, or that's not relevant to our journey, or why that's not a valid option for us, only creates more stress. In reality, the only way to really help someone struggling with Infertility is to become an "Ask. Provide Support" person. It's not your job to fix us. That's our job, and our doctors and specialists.



Anyways. I'm saying all this because we as infertiles need to learn to ask for the type of support we need. It's not always easy telling someone that the way they are handling your interactions is unhelpful or causing more harm than good. But it IS necessary. If those people can't handle or respect your needs/wishes... then maybe it's time re-assess that friendship. That being said, remember that your struggle is no more or less than anyone else's. Wanting people there for you, means being able to step outside of your own struggles and be there for others when they need you too... especially if this hardship sticks around for you as long as it has for us.


Finally, an end note. I often write poems to express the way I feel. So a new one below about the identity struggle of infertiles:


I
Me. I. A dissolving persona.
Masks of truth.
Masks of youth.
Me. I. A broken fraction.
Full of sadness.
Full of madness.
Me. I. A hopeless dreamer.
Years are passing.
Years amassing.
Me. I. A mother, a father.
Without a child.
Unreconciled. 
Me. 

Wednesday, 31 August 2016

Vision Board'ing

So my friend and her boyfriend recently made vision boards (also referred to as Dream Boards) and it sounded like so much fun that I figured I'd make one for myself. Of course, I've had the flu so didn't really feel like buying magazines and shuffling through to find accurate pictures and then cutting/pasting etc... although I'm sure fun, just didn't have the energy. Doing it online was a nice easy activity to pass time while at home by myself, sick on the couch. 

Anyways... after a quick search I came across the website Dream It Alive where you can make them online for free. Cool tool. I'm sure I could have done an equally or better job on photoshop, but I liked that it encouraged you to fulfill different categories and write affirmations.

As an infertile, I found it an incredibly great thing to do. Law of Attraction ya'll! I'm sure you can make some educated guess about some of the elements in there ;)

My finished product:

Tuesday, 30 August 2016

Reiki Reactions?


As infertiles, we're willing to try just about anything to stack the odds for success. That is one of the reasons long ago I began looking into holistic health and wellness practices. Diet being one of the first and most important contributors for me personally. I also tried various form of "holistic" treatments including acupuncture, craniosacral massage, and reiki.

I have been interested in learning Reiki since I first received it years ago while struggling through this whole infertility journey. It was a pretty profound experience then, and I believed my body was working through some things. I have since had sessions with various practitioners (some better than others as is always the case). Over the years my body has in fact gotten to a happier healthier state, though I admit, there are a lot of contributing factors... But as you take on all these infertility treatments; pills, injections, exams etc etc... it's nice to have a treatment that feels gentle and supportive. Some people love and swear by acupuncture... I could never really fully get on board with it. I tried... for one it didn't seem to help me all that much, and I also hated going. It felt like an annoyance and I didn't really "relax" during the sessions. It caused me a bit of anxiety being pricked with even more needles (when I was doing it daily for fertility drug injections and blood draws).

Due to recent studies (link1, link2) that have shown benefits to acupuncture, more and more REs are encouraging or supporting patients to pursue it in tandem with fertility treatments and IVF cycles. Personally, I have to believe that reiki has the same effect. By gently getting the energy moving through the bodily more smoothly/efficiently, and breaking up blockages, I believe the patient is getting the same result that acupuncture promises. Call it an airy-fairy wishy-washy theory, but if you haven't experienced reiki before (at least from a qualified and experienced practitioner) I strongly urge you to look into it.


Anyways, I believe, and I guess that's all that matters in my case, whether placebo or not. So this past weekend I went on the journey to becoming a practitioner in order to help myself first and foremost, but also others on their healing journey. There are 4 levels of Reiki training, and this was just my first. Basically we learned about the history of Reiki, the principals. How to give ourselves treatment (hand placements etc), and also how to give to others. In addition, we receive something called Reiki Attunements. In total over the course of the weekend we received 4 attunements which basically "plug" you into the energy. Again, I know this may sound a little far fetched to some, but experiencing is believing so don't knock it until you try it. It was pretty intense, and I experienced a wide range of physical sensations and emotions throughout the attunements. In particular a blockage I've felt in my right trapezoid for years was being released... towards/through my ear, no less. So it came as no surprise when I woke up the next morning with a massive ear ache.

The belief is that after receiving the attunements, your body pushes out the old dense energies and makes room for the lighter brighter reiki energies. Great... this is a good thing, and hopefully will aid in my overall sense of well-being... however that meant first I was going to get sick. Very sick. I had a horrible flu with aches, chills, fever the whole kit and kaboodle. In addition of course was the ear ache and a very swollen gland all on my right side. Coincidence? Maybe... but seems pretty crazy that first I feel the energy releasing that way and THEN it actually manifests in the physical.

I'm starting to feel better today which is nice. My ear still has a mild/dull ache.. not as bad as before, and it feels plugged, but the flu symptoms seem to have dissipated. I'm hoping that once I'm healed I'll have released that which no longer serves me and be on a path to feeling healthy and full of vitality!



Thursday, 25 August 2016

Bans Begin

Oh no...


I'm sure a bit proponent of this is in fact the tax component, but then the humanitarian in me wonders if these women are just in desperate times and resorting to desperate measures to support their own families...

Such a fine line.

With me considering surrogacy and having no one to really feel comfortable asking that huge burden of personally, and the cost locally being so high... options like this give infertile women like me a little glimmer of hope. And now looks like this is being taken away.

But the self-less part of me knows these women probably don't CHOOSE this... they do it because they have no other choice. Wonder if maybe it's ultimately a good thing for them. I dunno. Ugh.... so messy.

Thoughts?

Allergies Abound

So I went in for some allergy testing about a month ago... You'd think after being poked and prodded for years with ultrasound wands, injections and blood draws would make me a tougher cookie, but apparently I'm still a wuss.

I had the back scratch test, and my back blew up.. no really. The doc walks in and just goes, "woah okay ya, that's quite a reaction." When he asked me what I suspected I was allergic to and said everything, I think he didn't believe me... or just thought I was kidding. He slowly learned that living in a bubble may in fact be my best solution.

Unfortunately, because I had such a severe reaction, they worried that the ones I didn't react to with the back scratch test, may still be in fact allergens for me. So I had to go back in a separate day to get under the skin testing. Then a bunch more things added to the list. Oh man.

Finally... I went back again a third day. That's three torturous days in a week. This is when I did the venom test for allergies to bees/wasps etc. They start with a scratch test on the forearm and then progress to under the skin shots slowly upping the does. Honeybees and Yellow Jackets were added to the list. I have an epipen for those because I've had mild anaphylactic reactions in the past. And I seem to get stung a lot. It's like they've got it in for me...


Oh and did I mentioned they discovered I have asthma too!? Fun times. So yesterday I had my first day for injections/shots and we couldn't get through all rounds unfortunately. Basically because I have so much I'll allergic to, I get 4 shots. 1 for trees/grass/weeds etc. 1 for cats/dogs/dust mites etc. 1 for honeybees and 1 for yellow jackets. Well my arm blew up after getting the trees/grass/weeds shot, and then I started getting a rash/hives on my chest so they gave me a prednisone tablet and had me sit there to make sure things didn't progress, which luckily they didn't.

It all begs the question, if I am so allergic to these things that are so prevalent in our environment, and my body is in such an inflammatory, reactive state all the time, how would I ever get pregnant? I'm not looking for an easy quick fix here, but is it possible that my allergies are really what are preventing me from getting pregnant? Hmm..

Interesting further was the prednisone tablet they gave me for my reaction. It was the same dose my doc has talked about using for a future FET cycle. Other ladies have that low of a dose as well, but now I'm wondering if mine needs to be a little higher given the extent and severity of my allergies.

Monday, 22 August 2016

Cooking for my Cause

So if you're anything like me, you absolutely will do anything and everything to finally see those two double lines pop up on your HPT. The most recent trend worth trying I decided was the Autoimmune approach to eating. So, being the good little infertile I am, I obligingly bought two of the most standard "must have" resources for this.

The Autoimmune Paleo Cookbook by Mickey Trescott


and The Paleo Approach by Sarah Ballantyne

Of course I bought them about two months ago, flipped through them, and they've proceeded to sit on my counter unused. That being said I AM planning on using them, and have every intention of giving them a true effort, but I'm just not fully ready.

See as I settle into a new city, and absorb the fact that my third IVF failed, wondering if I'm destined to be an infertile forevermore, I decided I needed to be kinder to myself. This meant stopping the negative self-talk, the hate-on I had for my body, and in general, not restricting myself beyond what's necessary.

Right now we're "on a break" (oooooh... maybe I'll get pregnant.... NOT *insert eye roll*), so I'm letting myself cheat a little. If you've read my blog from the front end to the back end, which I'll admit is highly unlikely, you'll know I'm Gluten-Free, Dairy-Free, Egg-Free, Alcohol-Free and have recently eliminated red meat and pork. So "cheat" for me, really just means, ya I'm going to indulge in this gluten-free cookie that has a tiny big of egg white in it. Or sure, toss me one of those buckets of almond-milk peppermint dairy-free ice cream bite tubs full of sugar... and fully expect me to polish it off. But for now it's keeping me sane.

So when do I plan to start? Well... I definitely plan to give it a go as I begin my 3 month round of Lupron Depot. Not only am I anticipating feeling pretty crummy while on it, providing even more of a need for healthy eating, but also we are considering following up with an FET and I'd really love to give myself the best possible chance as usual.

Funny thing is, I think my body has been pretty happy on my diet as is for the most part. Sure I could do with more whole foods and less sugar and corn, but overall my body has made some major shifts since implementing the strict diets aforementioned. For example, my cycles! TMI alert... you'd been warned, but I used to spot for 7 days pre-menstrual cycle. 7 DAYS! That's a whole period before my period. So basically half the month I was bleeding out my hoo-ha. Fun right!? But lately I've been wondering if maybe, possibly I'm pregnant month after month because no... more... spotting. Of course, never ever have I been pregnant, so this is the hopeful naivety in me, but still very promising to see such a healthy shift in my cycle like that.

If I can feel even BETTER... well sign me up. Just give me a few more cookies first... 

Thursday, 14 July 2016

Surgery, FET, or Adopt?

I wish I just had a crystal ball sometimes... like I could just see into the future, have confidence knowing all will work out. I guess that's what faith is supposed to be, but I'm running low on that these days.

See every decision I make leaves me with a plethora of what-ifs. What if I had of held off transfer because I was sick last cycle? What if I hadn't of been sick? What if I had of done PGS? What if I had of pushed for immune protocol? What if we had done more testing? What if we had of put back in 3? What if we had only have put in 1? What if, what if, what if.....

It's hard to not look backwards, when you can't look forwards. When there is so much uncertainty in your future. When you have too many options... too many paths to choose from. For me, these days, those options are the big 3.

1. Surgery to treat endometriosis and hopefully increase odds of success following recovery.

2. FET with 2-3 of our remaining frozen embryos with a full immune protocol in place.

3. Adopt a newborn that is biologically not our own.

Within each of those there are more options.
Surgery:
- do we try right away after, or do we allow time to heal?
- do we try naturally following?
- do we follow this with IVF? or IUI?

FET:
- do I do intralipids even though I have a reaction to egg?
- do I do 6 months of lupron before trying? or just a few weeks like RE advised?
- do we put back in 1 to not muddle, 2 which we've done every other time, or risk doing 3?
- do we wait to do FET until I've been super good on my diet for 6 months?
- do we undergo any additional testing to get more answers?

Adoption:
- do we consider open adoption?
- what ethnicities are we open to?
- how does this work for Canadians living in US? Do we go to Canada?
- do we adopt internationally?
- do we accept twins/triplets?
- do we accept disabilities?

There's a lot to consider, and unfortunately I DON'T have a crystal ball, and unfortunately no one can tell us what is best for us at this time. But we don't know for ourselves anymore either.


Wednesday, 13 July 2016

Infertile Contradictions


I'm in pain. I'm excited. I'm hurt and angry. But I'm also so grateful.

Odd... yes. Sometimes living with the pain of infertility lends itself to moments of contradiction. My brother got married last November and him and his wife are already 9 weeks expecting. I'm sure pregnant on their first try, though I wouldn't want to ask or know.
Now anyone who has battled with infertility can only imagine how hard an announcement like this is to bear. My husband and I have been married 6 years, and been trying to start a family for 5 of them. Every announcement is another dagger to the heart and another couple leaving us in their dust. And family isn't any easier. I wish it were. I wish he could share this news with me and that all I felt in that precious moment (that I can't get back) was excitement and happiness for them. But while I did feel those things, my heart also broke a bit. I hung up the phone and broke down, only strong enough in the fleeting moments on the call. Had we been Facetime'ing or had he told me in person, he would likely have seen the anguish in my eyes, the struggle in my smile. But I'm sure he heard it in my voice.

What followed was not resentment, but a selfless act of compassion and understanding. He wrote me this:

"We just wanted to follow up on our chat because even though you might have been expecting this news, we can only imagine it was a little hard to hear, given what you and Homme Infertile have endured with everything. That said, we wanted you to know we are incredibly empathic to your situation and understand having any mixed emotions about it. Although this is obviously really exciting, we are still sensitive to what you’re going through. Please just know that we love and care about you deeply, and want only the best for you. We will always be here for you, even if it’s just to listen.

Much love"

Never have I ever been showed that level of understanding... from anyone, at any point on this journey. And to come from him meant the world to me, making me feel so incredibly grateful to have him in my life. So grateful for him and his ability to show empathy. Grateful for his words and kindness. I don't think you can understand how much an act of selflessness and understanding like this can mean to someone dealing with infertility unless you have walked in their shoes. So often people are frustrated with us 'infertiles' not being able to show/express happiness, or attend a baby shower, or whatever it may be. They are too closed off to the pain to understand just how hard every moment of every day is, let alone moments and interactions such as those.

It sucks. There is no way around it. But life goes on, and people have to live their lives. I am so excited to be an aunt, and can't wait to see my brother be a father. I am genuinely looking forward to that day. But the 9 months leading up to the birth are hard. There is no child to love yet, only jealousy over what is to come. But once they arrive, a lot of that pain and jealousy falls away. Not all...

What is also interesting is the effect these announcements can have on an infertile. I have not been ready to pursue another round of IVF, but the feelings of jealousy (and perhaps my competitive spirit) sparked a renewed motivation to go again. I can't explain it, and I judge myself for it. But it's my truth. The conversations between Homme InFertile and myself following this particular announcement were not easy. We both felt pain and fear. Fear that we wouldn't be able to give his child a cousin. Pain that we'd have to watch them become parents and never experience it ourselves. Confusion over how to resolve our broken path.

So we talked. And we cried. And we argued. And we exhausted ourselves running in circles over where to go from here. A relationship can only take so much grief, and we have been so strong for so long that I think we are tired of clawing our way through it all. My response is to fight harder. His is to give up, and those are at odds with each other. And that brews resentment.

These are hard things to face, and I feel grateful I have a husband who is willing to communicate through these struggles. Grateful he is someone who I can speak my truths to and him not fire back angrily, but instead try to understand where I'm coming from. Try to support me, even when it's not in the way I need.

So with that we've talked about counselling. Mostly for Homme InFertile, but I will attend, work, and support when needed. This tele-seminar also serendipitously appeared in my email inbox today so we've registered. If anyone else is struggling with the relationship aspect of coping with and navigating through infertility, check check it out. It's free, and it's this coming Saturday July 16th!
http://www.frommaybetobaby.com/journeyproof/?mc_cid=3c39ad1e93&mc_eid=e7e27d73f9

Also, this showed up on my news feed (okay universe... I hear you!) and it resonated completely and absolutely. Sometimes I feel resentful that no one asks how I am... but yet I also don't have the words or strength to be truthful if they did. This summed it up.
http://thoughtcatalog.com/heena-mak/2016/07/dont-ask-me-if-im-okay-because-i-dont-know-the-answer-anymore/

And finally to help me with the words I did a little googling and stumbled upon this gem. My fav (and what resonated most with me today) was the following:

6. Angry. Unfair is the password that gets you into the infertility club. Mary tells a story of a friend asking her if she was angry with God.“No!” she blurted. “I’m angry at pregnant women!” She knew this was irrational, but she also knew that it was good for her soul to be honest in safe places. You actually may be angry with God, and you may need to find some safe places to be honest about that.

The complete article here: http://www.stevewiens.com/2013/03/26/ten-words-that-describe-infertility/


And with that I'll sign off for today.
Love and light to you all on this journey!

Wednesday, 11 May 2016

Serious Conversations

How far are you willing to go to have a family? It's an important question to discuss with your partner when you start infertility treatments. It's important to be on the same page. Homme InFertile and I had that discussion... we were responsible in that regard, but it turns out... he forgot.

He forgot we had drawn a line in the sand... he forgot that we initially said 3 IVF transfers, which changed to 4 once our first retrieval had a low yield. He forgot that our next transfer would be our last.

So it's no surprise that me mentioning our last kick at the can and moving on came as a bit of a blow to him. It felt out of the blue... but it wasn't.

This whole discussion came out of our planning for our next FET (frozen embryo transfer). Since we are moving to Houston in a few short weeks, we have to put our TTC journey on hold for a moment before re-convening. First we'll have to get settled in our new hometown, then I go on a girls trip to Europe (lucky me), and then finally when I'm back we can re-group and re-focus.


But I'm naturally a planner, and I wanted to discuss now what our path will look like. I am half tempted to go see Dr. Braverman to get a full immune panel done. But this comes at a price. After looking into it, and going back and forth quite unsuccessfully via email with an intake coordinator, I was feeling a little apprehensive about the 3k price tag... and that doesn't even include out of pocket test costs. Ugh. Plus I'm fortunate my RE is willing to do an immune protocol without the tests to warrant it. So that's a lot of money that we prefer not to spend if we don't have to. Plus, it's money we don't exactly have at the moment with Homme InFertile having been unemployed the last few months.

So anyways, I wanted Homme InFertile and I to be on the same page with deciding whether to get all this information prior to our last transfer or not in the interest of giving ourselves the absolute best possible chance of a positive result. So it was within this discussion that are misunderstanding blossomed into an emotional and heartbreaking discussion about when to give up. When to admit defeat. When to walk away and turn our backs on our unborn biological children.

We had to let that sink in. We may never have our own biological children. The odds seem to be not in our favour. And that's a hard pill to swallow.

So we talked about a lot of things. My feelings of inadequacy, my fears of him turning his back on me, my fear of him resenting me, his fear that he's not enough for me, his feelings of being stuck - unable to move forward, my fear that I'd resent him if he weren't ready to adopt... the list goes on and on. As you can imagine. These aren't easy topics. We were emotionally and mentally drained, but it was a very positive discussion. Being on the same page is so incredibly important to coping with the stresses of infertility.

Anyways, I'm now looking in to Dr. Kwak-Kim who takes more insurance, while at the same time seeing if my current RE can send us for DQ-Alpha matching tests. We'll likely go on prednisone regardless, but part of me just really wants to understand why this is all happening. Plus, if we're a double match nothing we do will necessarily help us get pregnant other than surrogacy or donor sperm who doesn't match me DQ-Alpha wise....

Food for thought...